For you
These nonprofit organizations may be helpful as you manage patients with TGCT
EURORDIS is a nonprofit alliance of 869 patient organizations for rare diseases. The alliance works to improve the lives of over 30 million people affected by rare diseases throughout Europe.
The National Comprehensive Cancer Network® (NCCN®) is a not-for-profit alliance of 28 leading cancer centers devoted to patient care, research, and education. NCCN is dedicated to improving and facilitating quality, effective, efficient, and accessible cancer care so patients can live better lives.
NORD, or National Organization for Rare Disorders, is a patient advocacy organization dedicated to people with rare diseases, as well as the healthcare professionals and organizations that serve them. It offers services for patients, resources for medical professionals, and more.
SARC, or Sarcoma Alliance for Research through Collaboration, is a nonprofit group dedicated to the support of research for prevention, treatment, and cure of sarcomas. Founded by physicians, SARC offers resources for patients and medical professionals.
Sarcoma Alliance works to help improve the lives of people affected by sarcoma. It provides resources that help people access quality care, guidance, educational materials, and emotional support.
For your patients
Connections and tools
This handy card conveys key facts about localized TGCT and can be used to support your discussions with your patients about their condition.
This handy card conveys key facts about diffuse TGCT and can be used to support your discussions with your patients about their condition.
EURORDIS is a nonprofit alliance of 869 patient organizations for rare diseases. The alliance works to improve the lives of over 30 million people affected by rare diseases throughout Europe.
NORD, or National Organization for Rare Disorders, is a patient advocacy organization dedicated to people with rare diseases, as well as the healthcare professionals and organizations that serve them. It offers services for patients, resources for medical professionals, and more.
Sarcoma UK is a national charity that offers support to people affected by sarcoma. It helps drive disease awareness, funds research, and campaigns for improved standards of care.
The TGCT | PVNS | GCT-TS website offers information for patients about TGCT and its potential impact. The site includes content that explains TGCT, its potential treatment, and available resources.
SPAEN, or Sarcoma Patients EuroNet Association, aims to improve the situation for sarcoma patients around the world by providing information, support and by raising awareness for sarcomas.
CancerCare® is the leading national organization dedicated to providing free, professional support services including counseling, support groups, educational workshops, publications and financial assistance to anyone affected by cancer. All CancerCare services are provided by oncology social workers and world-leading cancer experts.
Sarcoma Alliance works to help improve the lives of people affected by sarcoma. It provides resources that help people access quality care, guidance, educational materials, and emotional support.