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For you

These nonprofit organizations may be helpful as you manage patients with TGCT

Browse these websites for treatment guidelines, lists of sarcoma centers, and the latest information for you and your patients.
EURORDIS

EURORDIS is a nonprofit alliance of 869 patient organizations for rare diseases. The alliance works to improve the lives of over 30 million people affected by rare diseases throughout Europe.


NCCN

The National Comprehensive Cancer Network® (NCCN®) is a not-for-profit alliance of 28 leading cancer centers devoted to patient care, research, and education. NCCN is dedicated to improving and facilitating quality, effective, efficient, and accessible cancer care so patients can live better lives.

NORD

NORD, or National Organization for Rare Disorders, is a patient advocacy organization dedicated to people with rare diseases, as well as the healthcare professionals and organizations that serve them. It offers services for patients, resources for medical professionals, and more.

SARC

SARC, or Sarcoma Alliance for Research through Collaboration, is a nonprofit group dedicated to the support of research for prevention, treatment, and cure of sarcomas. Founded by physicians, SARC offers resources for patients and medical professionals.


Sarcoma Alliance Logo
Sarcoma Alliance Logo

Sarcoma Alliance works to help improve the lives of people affected by sarcoma. It provides resources that help people access quality care, guidance, educational materials, and emotional support.

For your patients

Connections and tools

Below you’ll find additional information to share with your patients who are looking for TGCT community and support.
Localized TGCT fast facts

This handy card conveys key facts about localized TGCT and can be used to support your discussions with your patients about their condition.

Diffuse TGCT fast facts

This handy card conveys key facts about diffuse TGCT and can be used to support your discussions with your patients about their condition.

EURORDIS

EURORDIS is a nonprofit alliance of 869 patient organizations for rare diseases. The alliance works to improve the lives of over 30 million people affected by rare diseases throughout Europe.


NORD

NORD, or National Organization for Rare Disorders, is a patient advocacy organization dedicated to people with rare diseases, as well as the healthcare professionals and organizations that serve them. It offers services for patients, resources for medical professionals, and more.

Sarcoma UK

Sarcoma UK is a national charity that offers support to people affected by sarcoma. It helps drive disease awareness, funds research, and campaigns for improved standards of care.

TGCT | PVNS | GCT-TS

The TGCT | PVNS | GCT-TS website offers information for patients about TGCT and its potential impact. The site includes content that explains TGCT, its potential treatment, and available resources.


SPAEN Logo
SPAEN Logo

SPAEN, or Sarcoma Patients EuroNet Association, aims to improve the situation for sarcoma patients around the world by providing information, support and by raising awareness for sarcomas.

Cancer Care Logo
Cancer Care Logo

CancerCare® is the leading national organization dedicated to providing free, professional support services including counseling, support groups, educational workshopspublications and financial assistance to anyone affected by cancer. All CancerCare services are provided by oncology social workers and world-leading cancer experts.

Sarcoma Alliance Logo
Sarcoma Alliance Logo

Sarcoma Alliance works to help improve the lives of people affected by sarcoma. It provides resources that help people access quality care, guidance, educational materials, and emotional support.

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